You can’t fix dystonia with a cast

This title is a relatively poor attempt at a creative way to illustrate how so many people confuse dystonia with temporary ailments like the flu, other short-term health issues,...

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Self care tools for relieving pain, stress, & muscle spasms

The products in this blog are for informational purposes only. Please consult a physician before using any of these products. The reader accepts full responsibility for the use of...

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What really is a dystonic storm?

Edited excerpt from the book: Diagnosis Dystonia: Navigating the Journey. Special thanks to contributing author, Ruth Curtis, for research and personal accounts from her experience with dystonic storms. This should actually...

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How do we find ourselves? Get lost!

In the summer of 2001, I developed a neurological movement disorder called Cervical Dystonia (CD). In the very beginning, I saw chiropractors, medical doctors, massage therapists, physical therapists, psychologists,...

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What does dystonia feel like?

Unless you live with dystonia, it is very hard to understand how it physically feels, let alone the mental and emotional challenges that come with it. For some people,...

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The Dystonia Diagnosis and Prognosis

“You have dystonia” are three words that can be very confusing and frightening. Receiving the news that you have any chronic condition can bring out a lot of emotions....

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Be your best health advocate

Living well with dystonia and other chronic conditions requires that we be disciplined in taking good care of ourselves. Some people rely solely on their doctors for care. Unfortunately,...

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Asking for help when living with dystonia

I have lived with dystonia for over 15 years. For more than half of those years, I had a hard time asking for help. My ego stood in the...

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Post Traumatic Growth

We often hear the term Post Traumatic Stress Disorder (PTSD), a mental health condition triggered by a traumatic event. PTSD is commonly used in context of military personnel returning...

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Dystonia and the opinion of others

While I truly believe that people are well intended, their opinions and comments often miss the mark when it comes to what we experience living with dystonia. Some of...

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Dystonia and the Highly Sensitive Person

I believe that people with dystonia and other disorders have very similar personality traits. One such trait, or rather, set of personality traits I find common among those with...

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