The Dystonia Diagnosis and Prognosis

“You have dystonia” are three words that can be very confusing and frightening. Receiving the news that you have any chronic condition can bring out a lot of emotions....

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Be your best health advocate

Living well with dystonia and other chronic conditions requires that we be disciplined in taking good care of ourselves. Some people rely solely on their doctors for care. Unfortunately,...

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How social media may fuel depression

Have you ever played the social media comparison game? If you have, you are not alone. Most people at one time or another have gotten caught up in what...

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The hidden opportunities within our ‘problems’

Life is filled with endless opportunities. Sometimes the opportunities, or silver lining, are hard to see when we have problems with our health, finances, family, or career, but they...

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Asking for help when living with dystonia

I have lived with dystonia for over 15 years. For more than half of those years, I had a hard time asking for help. My ego stood in the...

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Dystonia and the opinion of others

While I truly believe that people are well intended, their opinions and comments often miss the mark when it comes to what we experience living with dystonia. Some of...

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