When the pain and muscles contractions from dystonia were at their worst for me (see below), it significantly limited what I could do. For years I characterized dystonia as...
Ahhh… sleep!! It feels so good when we get it. Unfortunately, quality sleep is something that eludes many of us. It seems that more and more of us sleep...
When we are faced with a limiting health issue where performing “simple” everyday activities becomes a challenge, our self-confidence and self-worth can dwindle. This can happen with any health...
I think most of us would agree that anxiety is quite common among the dystonia population. It is not a feature or symptom of dystonia, but given the major...
As we all know, stress and dystonia (or any other health condition) do not mix. It can have a negative impact on our symptoms, such as increased spasms, twisting,...
“Acceptance doesn’t mean resignation. It means understanding that something is what it is and there’s got to be a way through it.” ~ Michael J. Fox ~ Dystonia can...
After being diagnosed with dystonia and learning it is not a temporary problem (or if you have lived with it for years and are feeling fed up), experiencing fear,...
People often ask what I eat since nutrition is very important to me, especially as it relates to helping control pain and other symptoms of dystonia. I also used...
Most people have probably heard the saying, “change your thoughts, change your life.” There is great truth to this because how we think can significantly impact our mental and...
This title is a relatively poor attempt at a creative way to illustrate how so many people confuse dystonia with temporary ailments like the flu, other short-term health issues,...
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It is so important to be prepared for doctor visits. This can’t be stressed enough. Dystonia is a complex disorder and our symptoms are very specific to us, making...
In the summer of 2001, I developed a neurological movement disorder called Cervical Dystonia (CD). In the very beginning, I saw chiropractors, medical doctors, massage therapists, physical therapists, psychologists,...
Unless you live with dystonia, it is very hard to understand how it physically feels, let alone the mental and emotional challenges that come with it. For some people,...
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