How Dystonia Changed My World and How I Learned to Move Forward

For most of my 25 years with chronic pain and other symptoms from dystonia, a neurological movement disorder, I viewed it as a curse; an evil intruder that ruined...

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Creating Inner Space to Reduce Pain and Burnout

In this blog, I want to explore what it truly means to hold space for ourselves—emotionally, mentally, and physically—and how doing so can reduce pain, ease burnout, and create...

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Lessons learned from 25 years of dystonia and pain

August 2026 marks the 25‑year anniversary when dystonia and chronic pain completely changed the course of my life in ways I never could have imagined. As I look back...

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Movement Disorders: The Expanding Science of Motor and Non‑Motor Symptoms

Living with dystonia and other movement disorders means navigating far more than muscle spasms or abnormal postures—and if have dystonia, you already know this. As patients, we feel the...

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The Quiet Anger: Processing the Emotional Toll of Chronic Health Conditions

Living with chronic pain or other health conditions is, in many ways, an exercise in perpetual, involuntary mindfulness. For those of us navigating long-term conditions—like my own twenty‑five‑year journey...

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When Your Brain Won’t Quiet Down: A Look at Dystonia and Anxiety

One of the hardest things about living with dystonia is trying to explain what it feels like on the inside. People often see (not always for some) the muscle...

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New Audiobook Announcement

Over the years, people have asked if my books have an audio version and I am excited to share that my second book, Beyond Pain and Suffering: Adapting to...

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5 lessons nature taught me about living with pain and dystonia

I’ve always been a nature lover. I like nothing better than going for a hike in the woods or strolling along the beach or gazing at the mountains –...

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How I manage my pain – Pain Series Part 3 of 3

This is Part 3 of three articles I wrote about pain. The first 2 are entitled: Part 1- The real impact of pain that people cannot see Part 2-...

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The real impact of pain that people cannot see – Pain Series Part 1 of 3

Pain Series Part 1 of 3 Pain is one of the most intrusive things we can experience because it impacts nearly every aspect of our lives, especially if it...

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The value of living with tremendous challenges

If you got past the title without rolling your eyes or getting angry (I understand if you did either or both as you will see below), I hope you...

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Thanksgiving quotes we can use every day

Quotes are some of my favorite things. Some of them I read or hear and they go in one ear and out the other. Then there are some that...

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Is your mental diet helping or hurting your health?

When we hear the word diet, most of us automatically think of food. But what about our thoughts? Let’s look at them in terms of consumption as well. According...

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Tips for healthy living with a chronic health condition

When we are faced with a limiting health issue where performing “simple” everyday activities becomes a challenge, our self-confidence and self-worth can dwindle. This can happen with any health...

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If you live with pain or other chronic conditions and have anxiety and fear, it is not your fault

Having lived with a life changing health condition called dystonia since 2001, I have learned some really tough lessons about myself, other people, and life in general. When it...

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